The Little Boy with the Big Heart

This storyfollows Will, a little boy living with Hypertrophic Cardiomyopathy (HCM), a genetic heart condition. Through Will’s journey, children and families can see that regular doctor visits, medical tests, and procedures don’t have to feel scary or unusual—they can simply be part of caring for a healthy heart.

The book also explains some of the medical terms connected to HCM in simple, easy-to-understand ways, helping both children and parents feel more confident. At the same time, it shines a light on the importance of improving how HCM is diagnosed and treated.

The Massey Family would like to extend their heartfelt gratitude to the Hypertrophic Cardiomyopathy Association (HCMA, 4hcma.org) for their tireless work to educate, support, and bring hope to families and communities affected by HCM.